Libby Huffer, 45, said she was branded ālizard breathā and ātoadā by playground bullies during decades of abuse over her condition. Libby has Neurofibromatosis, a genetic neurological disorder that causes non-cancerous bumps to form on her body wherever nerves are present.An outbreak of hundreds of tumors multiplied into thousands after she fell pregnant with her daughter Lindsey 23 years ago.

The condition left her suffering from chronic pain that meant even a hug would hurt her.
After sharing her plight, the mum from Fort Wayne, Indiana, US, was offered specialist treatment to reduce the physical appearance of the disorder by daytime TV Show The Doctors.
Last June, she underwent her second electrodesiccation surgery to kill off 1,000 of the ābumpsā on her face and the tissue causing the growths.
To lessen the scarring, she then had C02 laser surgery, which smooths out the skin and reduces the appearance of marks.
Sheās noticed a āhuge differenceā in her appearance since her surgery but hopes that others will be more understanding towards people battling with Neurofibromatosis.
āMy friends and family say that I look great and they notice a huge difference.

āMy life hasnāt been any different since surgery other than I have raised lots of awareness for NF, which has always been my biggest goal.
āThereās still a long way to go to heal the emotional damage Iāve undergone over the years, but I know that will only improve over time.
āThe more surgeries I have, the more confident I will become and that will help to erase some of my painful memories.ā
Libby was a teenager when hundreds of bumps caused by Neurofibromatosis 1 developed on her skin ā the condition affects one in 2,500 people.
She added: āThe tumors all over my back cause chronic pain, and the nerves in my feet have a tingling sensation all the time which makes it hard to sleep.
āThey can even hurt from simple things like a hug or even if water from the shower hits them in a certain way.
āBut Iām not contagious I have a neurological genetic disorder that causes tumours to form on both the inside and outside of the body wherever there are nerves present.
āI am a human being too, all I want is to be adored and cared for like anyone else.
āInstead of making comments, I wish people would talk to me rather than stare like Iām a circus freak, it just makes me feel really uncomfortable.ā
Since revealing her battles with the disorder, Libby embraced her mantra āIf weāre not seen, we canāt be heardā and started the Facebook page āFaces of Neurofibromatosisā to help unite others with the disorder.
She says the group has helped provide support and further awareness to sufferers.
Libby added: āYou have to have NF or be the parent of a child under 18 years old to be a member, everyone in our Family has NF or is a parent of a minor child with NF ā everyone is wonderful and very supportive!
āThe page was created on 02/12/16 with only two members, myself and my mom ā today my page is at 5,000 NF members worldwide.ā
Libby and charity Neurofibromatosis Midwest, are fundraising to educate the community further, fund further medical research into the disorder, and more.